自闭症 Autism Spectrum Disorder (ASD) 资源

mindbodygarden.com

在旧金山湾区,我收到了很多父母们的问题和求助,每次和特殊需要家庭的爸爸妈妈们相聚,我的内心都一次次被感动。


整合了各种资源后,我终于请到了我以前在Kaiser医院儿科的老同事,现在Kaiser医院自闭症检测科的Burton博士,来我们诊所进行自闭症和其他儿童情绪行为问题的诊断。专业的诊断和高质量的诊断报告很重要,因为只有这样的诊断书才会被医院,学校,和社会服务系统接受,才能帮助孩子获得批准,得到所需要的资源,例如ABA服务。


在我们实习生的配合翻译下,我们正在帮助更多的双语家庭了解自闭症,确诊自闭症,准确理解更专业的诊断报告和后续治疗建议。Burton博士在美国斯坦福大学自闭症中心和美国军队医院受过系统训练,不但对诊断很在行,还很擅长自闭症家长的教育和支持。我们之后整合了更多的材料后,会开展更多这样的社区服务。


感谢网友们和Lynn Hwu, PsyD, BCBA的整理推荐。资源还会不断更新中。


中文资源

Support for families of children with disabilities 中文工作人员

Regional center 中文工作人员

Autism support network 选择中文或者中国地区

中文的书籍资料请参考这个链接

中文的自闭症相关的公众号:

“大米和小米”

“以琳星家园”


英文资源



SocialPrograms

Via Services

http://www.viaservices.org/services/altitude-via/fall-winter-spring?gclid=CjwKEAjw7svABRCi_KPzoPr53QoSJAABSvxf9TvhItdRdtDS5-xCjxasGanPil8mvMMzeljGS9e5wxoC6I_w_wcBServices

Autism Support Network

http://localmarket.autismsupportnetwork.com/Summer_Autism_Programs_San_Jose_CA-p1561043-San_Jose_CA.html

After School Programs

https://www.autismspeaks.org/resource-guide/by-state/121/After-School%20Programs/ca

Camps

https://www.autismspeaks.org/resource-guide/by-state/126/Camps/CA

Social Thinking

https://www.socialthinking.com/Clinics/San-Jose

EvoLibri

http://evolibri.com/

Community Advisory Committee for SpecialEducation in Palo Alto

http://cacpaloalto.org/information-center/palo-alto-area-resources/social-programs/



Services

San Andres Regional Center (SARC)

300 Orchard City Drive, Suite 170, Campbell, CA95008, 408-374-9960

www.sanandreasregional.org

Bay Area Autism Nonprofit Guide

http://www.sfautismsociety.org/bay-area-autism-nonprofit-guide.html



Education,Research, Advocacy, Support

Autism Speaks

https://www.autismspeaks.org

Parents Helping Parents

http://www.php.com/

PHP Events:

http://my.php.com/events?combine=autism&field_php_sponsored_value=All&date_filter%5Bvalue%5D%5Bdate%5D=

Autism Society

http://www.autism-society.org/

NationalAssociation of Councils on Developmental Disabilities 

www.nacdd.org 



HomeSchooling

PHP Events

http://my.php.com/events?combine=&field_php_sponsored_value=yes+&date_filter%5Bvalue%5D%5Bdate%5D=&field_tags_tid=766&field_presented_in_value=All



Work

Autism and Employment

https://www.autismspeaks.org/family-services/adult-services/autism-and-employment

https://www.autismspeaks.org/sites/default/files/docs/employment_tool_kit_parent_booklet.pdf

Work in progress: An inside look at Autism’sjob boom

https://spectrumnews.org/features/deep-dive/work-in-progress-an-inside-look-at-autisms-job-boom/





Volunteering

Volunteer San Jose

http://www.sanjoseca.gov/Index.aspx?NID=211

Talk About Curing Autism (TACA)

http://www.tacanow.org/family-resources/volunteering-opportunities-for-people-with-asd/



LegalMatters (Conservatorship,Guardianship, Trusts)

Overview:https://www.autismspeaks.org/family-services/tool-kits/transition-tool-kit/legal-matters

Academy ofSpecial Needs Answers

www.specialneedsanswers.com  



Transition Matters: From School to Independence

Supplemental Security Income (SSI) vsSocial Security Disability Insurance/Disabled Adult Child Benefits (SSDI)

http://www.specialneedsanswers.com/three-big-differences-between-ssi-and-ssdi-14866

U.S. SocialSecurity Administration

www.ssa.gov

SocialSecurity Income

www.ssa.gov/disability  

EligibilityInformation  

www.ssa.gov/ssi/text-eligibility-ussi.htm

In home support services (IHSS)

http://www.disabilityrightsca.org/pubs/549301.pdf

Autism Speak: Adult with Autism: Whatservices and Program are Available at Twenty-Two?

https://www.autismspeaks.org/family-services/community-connections/adults-autism-what-services-and-programs-are-available-twenty-



ASD Board in Care

Autism Society

http://www.sfautismsociety.org/housing-options-for-adults-with-autism.html

Housing and Community Living

https://www.autismspeaks.org/family-services/housing-and-community-living

Housing: Community Living (GroupHomes/Supported Living)

http://www.new-horizons.org/hougrh.html

Group Homes and Residential Supports forPeople with Autism

http://foundationforautismsupportandtraining.org/groupHomes.html

Pacific Autism Center for Education(PACE)

http://www.pacificautism.org/programs/residential-services/

Autism Society Residential Options

http://www.ieautism.org/teen-adult/residential-options/



Books



书籍目录还可以参考我们的另一篇总结:ASD自闭症谱系:家长孩子阅读书目

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